The experimental treatment issue is more regarding how govt organizations like the FDA handle experimental protocols.
One should be able to waive most of the red tape surrounding an untreatable illness to an established body, like a medical teaching university or similar. And in many cases, this could result in the worsening or death of the patient. Yet, this kind of protocol is definitely frowned upon. Unfortunately because of how hamfisted the FDA is, I would dare-say that more people die from not having access to experimental treatments. Instead, you have to go to $somewhere_else to get the requisite treatment.
One should be able to waive most of the red tape surrounding an untreatable illness to an established body, like a medical teaching university or similar. And in many cases, this could result in the worsening or death of the patient. Yet, this kind of protocol is definitely frowned upon. Unfortunately because of how hamfisted the FDA is, I would dare-say that more people die from not having access to experimental treatments. Instead, you have to go to $somewhere_else to get the requisite treatment.
Some sources show that this is likely true, but would need further study. http://www.fdareview.org/05_harm.php